Allowing some time to process ones thoughts enables the right decisions to be made...
at least I hope!
Tonight I must try to stay brief as I have much work to do before the morning... anyhow this week has been a challenge for me with decisions for me to make with some of the early intervention program that my Cheeky Boy is involved with. I am still trying to filter through my head what to do as I believe as a child with complex epilepsy he needs to have someone to supervise him at all times. Not that he has small seizures all the time, this isn't his problem. His problem is that with his variety of seizure types they go for 10 minutes and longer and when he has his 'big' ones that need medication to stop them as they typically go for 20 minutes or more every time.
After a meeting with his teachers I feel they don't quite grasp the nature of his seizures and the fact he does need his sleep. Does any child at three years of age find it easy to sleep in a class with other special needs children racing around and making noise?? At most there should only be five other kids in the class but still... I'm not sure, I can't quite see this situation being easy to do for him especially when a change of routine on several levels is required...perhaps I'm just a slightly confused mum who is trying to figure out what's best for her child? To me trying to get any child to sleep in the corner of the room on a mattress would be difficult in a classroom situation, even if the kids are out in the playground, it's not the same as being in a bed...
I also feel a little disappointed that my request for a look into one-on-one supervision was brushed over as "not really going to happen..." I think it will be a visit to the Principal and showing of the letter from his Neurologist once again to see what can be done.
Ultimately I would love to put him into a Day Care facility for a day where provisions are made for his needs...it would be great for him to have the stimulus of 'normal' children as this would be most beneficial to him. He loves getting into his sisters class and sitting with the other children so I think this avenue will need to be explored.
As for my RozArt work that is keeping me busy late at night... I have jewellery valuations to finish and Dog Tags for pets and some lucky mums are having some beautiful tags as pendants being made... all shall be done for Monday so they get them before Easter :-)
Also, it's only 9 weeks until the RSPCA Million Paws Walk! Time goes by so quickly!
Here's the link for you to find the one in your state:
Must get back to it. Have a lovely weekend and week ahead :-)
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