With all these roles or hats, I work into the night and still have the role of making sure my Cheeky Boy is safe when waking with his 'nodding' seizures during the night. These have reduced in severity whilst his been placed on an extra regime of drugs but these drugs are slowly being reduced over the next few months to see how his body and brain are coping with all his seizures. Fingers are crossed for an improvement when the course of drugs are complete but one can never be completely sure if it will work or whether the decrease in drugs will equal an increase in seizures. Only time will tell.
So how do I feel about having all these hats... at this point in the week some part of me feels like a train that is going to derail from an increase in load and the breaks are having a hard time slowing it down. Then there is the other part of me which acknowledges the stress and feels that things always become easier with time. Everything ebbs and flows, everything comes with downs and ups. As long as there is more ups, then what is there really to complain about, life is good :-)
The other thing that comes with these hats is a feeling of guilt at times. I know all you working mums out there know exactly what I am talking about. It's a conflict at times between trying to put food on the table and earning the money to put that food on the table! It also creates guilt when you feel you aren't spending enough time with the kids but I do realise that ultimately it's the quality of the time we spend with them that is the most important thing.
I guess the ultimate goal would be to have a balance between the wearing of all these hats but as one can not predict all that is on the road ahead, one can only try their best to reach this goal. As I am only human, these hats will become unbalanced at times but I will keep learning and keep trying to get them right, that's all I can do :-)
In the spirit of wearing hats, I thought I may share with you a special dog tag I have made dedicated to all those who must travel away from their loved ones to work and must call the place they lie their hat their 'home'.
Please click on the link below if you would like to take a closer look at the details of this tag. As some of you may already know that with every Dog Tag I make and sell, a portion of the money goes directly to the Friends of Brain Injured Children ACT Inc (FBIC). This wonderful small charity helps with paying some of the medical bills beautiful children like my Cheeky Boy have during the year. Thank you FBIC.
http://www.rozart.com.au/index.php?page=shop.product_details&flypage=flypage.tpl&product_id=174&category_id=52&option=com_virtuemart&Itemid=29
On a final note for this week, here is a link to a video that I received which shows us how a man who has a 'disability' is able to do 'normal' things. What an inspiration to all...
The video is titled The Blind Handyman and his name is Phil Parr from Lefkin Texas
http://www.coolestone.com/media/5193/The-Blind-Handyman---Inspirational/
and he even runs his own radio program called the The Blind Handyman Radio Show. Please take a look at this, a group to inspire:
www.acbradio.org
Please enjoy and never let what other people see as a 'disability' stand in your way :-)
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