As I reflect on the time we spent away visiting family I look at it as having been an enjoyable time and what is 'normal' for us - things never quite going to plan. When you have a Cheeky Boy like mine, having a 'holiday' almost never happens without a visit from the wonderful people from the local Ambulance Service and a trip to the closest hospital able to best deal with his seizures. This Christmas break was one that required our plans going out the window for a little while, once again.
My beautiful boy woke up happy as usual, then when he went for a morning nap he woke up after 10 minutes and my mum bought him to me (I wasn't too fast on my feet as I had had an operation on a toe three days prior) and I said to her, he is having a seizure (one of his big ones where he looses awareness of what is going on around him). With this I took him and our usual routine kicks in with me placing him on a bed on his side and administering a dose of medication that is to help stop him seizing. The Ambulance service is called and we wait for their arrival.
Typically his large seizures last around twenty minutes or more even with medication being administered by me and as this medication has the potential to stop him from breathing, I ring an Ambulance every time. Also, I can not predict if my dose of anti-seizure medication will work so at times the Ambulance Officers are required to give him more to cease the seizure and other times it takes Doctors at the Emergency Department to give him other doses and combinations of medications to stop them.
This time it took the Doctors to sort advice from his Paediatric Neurologist to make decisions as to what medications to use and when, as my Cheeky Boy ended up having a four and a half hour seizure. As I am his eyes and ears during these events, the Doctors rely on me telling them about the supple changes of his seizure and they rely on my judgement as to when the seizure activity has stopped. This is due to his seizures of late consisting of him coming in and out of consciousness and the seizure activity staying within his head, only his eyes tell us when he has stopped.
So with all of this, my true indicator that my Cheeky Boy had come back to full consciousness, though drowsy from all the drugs, was by him blowing me a raspberry! Cheeky Boy indeed :-)
With him coming conscious, he was transported to Sydney Kids Hospital without having to be put on a ventilator, which was nice. He sat in the Ambulance watching Peppa Pig, like not much had happened for the last five hours! After a couple of days in hospital and the adding of more drugs to his regime we got to spend Christmas with the family and he enjoyed the simple pleasure of ripping off and up the wrapping paper and laughing at the noise it makes :-)
When you have a child with special needs, the simple things in life are joyous. It makes you see the beauty in things we would otherwise take for granted. Just like watching his pure joy of making paper make a sound when ripping it. Like watching him over Christmas lunch find amazement at the sound parrots make as they are flying past. Like watching him laugh hysterically at his cousin who pops up from within a big empty box and says "boo" over and over again.
The simple things in life are what we miss when we rush around all day. Many people don't see the simple joys of life, too busy doing something... My son despite all he has gone through fines these simple pleasures and it allows all of those around him to stop what they are doing and immerse themselves in these moments. How wonderful is this! I am truly blessed to have him to remind me of such pleasures.
Children are the ones who are not clouded by what's going on in the world around them. We need to place ourselves in their shoes more often to bring us back to the simple things in life.
I received a video earlier in the week of a customers son, he is seven. In this video, he describes how he feels about receiving one of my Skull & Cross Bones tags. Here's his picture:
If you would like to have a closer look at this Skull and Cross Bones tag please click on the link below:
http://www.rozart.com.au/index.php?page=shop.product_details&flypage=flypage.tpl&product_id=207&category_id=50&option=com_virtuemart&Itemid=29
I enjoy making these Dog Tags, the simple joy it brings to others is wonderful. Please watch my YouTube video and tell me you don't agree:
http://www.youtube.com/watch?v=TrRkZnK2e2w&feature=youtu.be
and to finish things off, here's a link to a story I received on Facebook yesterday. It's entitled:
A Dog's Purpose? (from a 6-year-old)
This is another story by which we can learn so much from the thoughts of a child. Enjoy!
This is another story by which we can learn so much from the thoughts of a child. Enjoy!
http://www.facebook.com/UltimaNR/photos_stream#!/photo.php?fbid=203083906458804&set=pb.102563086510887.-2207520000.1357821145&type=3&theater
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