Here's to the Start of a Great 2013

Here's to the start of a great 2013... that's not to say that will not be times that are challenging, tiring, with tears and times one wishes to pull ones hair out but you know what, these times are part of what will make the year great. How you ask? because these times make me appreciate even more all the happiness, laughter, proud moments, and the things that make our lives 'normal'.

Just to give you a little background of who I am... I'm a creative spirit, a wife, a mother of two, a full time carer for my 3 year old son, a teacher, a business woman, an organiser, a dreamer, a person who dreams of a the day when I get a good night sleep! and an optimist.

I am a mum of two beautiful children, a cheeky girl who is 5 and a cheeky boy who is 3. As I mentioned above, I am my sons full time carer. He is a beautiful boy who had a 'normal' start to life but when he was only four days old, this all changed. His blood sugar level (BSL) dropped so low that his brain started shutting down and as a consequence he as an acquired brain injury (ABI). To say the least from that day, our lives changed forever but despite all the challenges that he has faced and we have faced with him, he is a most beautiful, cheeky and strong spirited little boy.

As a consequence of the ABI, my cheeky boy has some challenges in his life, these include having several forms of epilepsy and some developmental delays. With one type of epilepsy, he has seizures everyday as he wakes from sleep, including daytime naps. I call these 'nods' by which he muscles contract involuntarily causing him to nod forward and puts him at risk of hitting his face on things or to fall over. These seizures also cause him to wake several times at night and therefore I sleep in the same room as him to try and keep him safe from any accidental injuries. We also have ambulances visit our house at least once a month due to his other epileptic seizures. If you would like to have a read of  My Sons Story please do.

As of the 1 January 2012, I made the decision to start a new business within the year. I had an idea of what I wanted to do but my New Years Resolution was to start it. I wanted to produce jewellery for people and their pets with a portion of every sale going directly to the Friends of Brain Injured Children ACT Inc. (FBIC) charity. With my commitment, family support and the support of people who believe in my vision, this has come true, as of October 2012 my new website has been launched www.rozart.com.au

Throughout this process I have had even less sleep as I try to complete products at night for the site. I am also committed to a radio ad campaign which launched in October here in Canberra. The whole point of me doing this has been to get the message out about the wonderful FBIC charity that has given some financial assistance to my son for his medical expenses. My son does not receive any government funding for medical expenses besides the basic Health Care Card due to his 'conditions' not fitting into any of their 'guidelines'.

Now that my website is up and running it is now time for me (as of the 1 January 2013), to commit to spreading the message throughout the social media networks about children like my son and the small charities who try their best to help such children and their families. Hence the start of this blog.

I also wish to share everyday stories with you about being a carer of a child with special needs and how I am committed to him, my whole family and to the following of my dreams. I hope you all will join me on this fantastic journey...

Here's a photo of how beautiful the 1 January 2013 was for me and my family as we visited the Central Coast of NSW: